Williams syndrome is a rare genetic condition, present from birth, that affects about 1 in every 7,500 to 10,000 people. Most people have never heard of it. We want to change that.
Our Williams Syndrome Stories are real stories from real families: children living with Williams syndrome, and children we have lost but will never stop talking about. Every story shared helps another family get answers sooner.
Share your child's story
If your child or someone you love has Williams syndrome, we would be honoured to share their story. Send us a message on our Facebook page or through our contact page, and we will send you a few simple questions. Answer as much or as little as you want.
Our promise to every family
- Nothing is posted without written permission from a parent or legal guardian.
- We use first names only unless you tell us otherwise, and we never share schools, towns or anything that shows where a child lives.
- You can see the story before it goes up.
- Stories are never used in ads.
- You can ask us to remove a story at any time, no questions asked.